At this time everyone is collecting funds on social media for Ashmika, a 1 year old girl living in Ranaghat, Ashmika who is 1 year old girl, and at this age where all children live happily and their parents are also happy with their little child, this girl named Ashmika is going through a rare disease.
Name is Ashmika, only 1 year old baby girl. When you call her name, she lies on the bed and laughs. But this smile will remain? Parents sleepless at night due to fear. Parents don’t know if the girl will crawl, then walk on her feet, will be able to see these scenes at all.
Let us know in today’s article that Ashmika, a resident of Ranaghat is suffering from which rare disease, is there any treatment for it, how much money is going to be spent and what is the reason for this rare disease.
Ranaghat Ashmika Das was suffering from a rare disease
Asmika’s small body has a terrible rare disease. It is called spinal muscular atrophy type-1. Due to this disease, the baby’s muscles are slowly wasting away. If the child is not given a special injection by the age of one and a half years, it will be difficult for him to stand up in the future.
And huge expenses are being incurred while getting treatment, but giving that injection is beyond the power of Ashmika’s family. The cost of that injection is 16 crore rupees. This is a big sum for any middle class family. Therefore, Ashmika’s parents are reaching out to people through social media hoping for help.
This small gem truly preserves the sweetness of the name like a moonlit face. Round eyes, when looking at the face, are full of life!
A few days ago Ashmika turned one year old. The cake was also cut by mother’s hand. No, it would be better to say, mother held her hand and cut the cake. Parents will be very happy on the first birthday of their only daughter! But no, it is not so. Instead, there are tears in their eyes.
As Ashmika is growing up, her parents are having a tough time. Inability to close eyelids at night due to anxiety. And seeing Ashmika’s sleeping face during the day, the eyes become blurry. Ashmika and her parents have six months time.
Within that time, Ranaghat Ashmika Das will need to be given an injection, no she will not have to give any five or any other kind of vaccines but one injection worth Rs 16 crores.
And if they are not able to give this injection then Ashmika will neither be able to get up nor walk. Ashmika Das, a resident of Ranaghat, Nadia, is fighting a difficult disease at the age of one year. A rear disease is slowly snatching a daughter from her parents.
Which rare disease is Ranaghat Ashmika Das of suffering from?
1-year-old Ashmika is the daughter of Subhankar Das and Lakshmi Das, residents of Swami Vivekananda Sarani Daspara in Ranaghat. She was born in January 2024. But after only 4 months, Ashmika was diagonosed with a rare disease, whose scientific name is Spinal Muscular Atrophy.
This disease stops the growth of some parts of the body. And Ashmika is unable to move like other children. Relieving the disease requires an injection called ‘Zolgensama’, which is very expensive. The cost of treatment is approximately 16 crores.
Subhankar and Lakshmi are children of middle class family. Where will they get so much money for the girl? Ashmika’s family is not finding any solution after thinking about this. They urged common people to come forward for help to save the girl.
What is the reason for the occurrence of this rare disease?
Ashmika’s mother Lakshmi Sarkar Das said, She was fine like other children till the age of three months. She used to lift her feet and shake her hands. When she was three and a half months old, suddenly one day i saw that the leg was not lifting anymore.
Three-four month old babies usually have a stiff neck. But nothing was happening to her. After that the running started. Treatment is started on the advice of a pediatrician. This complex disease is not treated in Nadia. So they had to go from Kolkata to Bangalore via Chennai. Parents rushed to several hospitals to recover little Ashmika.
Ashmika’s father Subhankar Das said, she was first shown to a private hospital in Mukundapur from there, the doctor gave some tests. SMN gene test done, report comes after 20 days, the doctor said it is a rare disease. Its treatment is not available in India. And the treatment that is available, it costs billions of rupees. After this they went to Vellore with Ashmika.
Spinal cord is a very complex disease. Ashmika’s doctor Sanjukta Dey said, Spinal muscular atrophy is a genetic disorder, which is caused by genes. Affects nerves and muscles. The growth of nerves and muscles of hands and legs stops.
This injection is licensed for children under two years of age. It can be called an orphan drug. That is gene therapy, that is to say ‘Onasemnogene-Abeparvovec‘. It has to be injected into the body once.
What dose this injection do? The doctor told that this medicine goes into the body and helps the cells in producing the proteins which are defective genes which are not able to make proteins. This injection is not available here, which has to be imported from outside.
The price of the injection is 9 crores. But the total, including taxes and import charges, may cost up-to Rs 16 crore.
How much more money is required to give injection of Rs 16 crore to Ashmika?
Another 12 crore rupees are required within the next 5 months. So far only 4 crores have been collected for the girl’s treatment. The parents of Ranaghat’s 1-year-old Ashmika, Subhankar Das and Lakshmi Das, are in mourning.
Many have come forward, even then Ranaghat Ashmika Das family is not able to get everything together. Ashmika suffering from a rare disease. It is not that there is no treatment. However, an injection of 16 crore is required. Singer Shubmita Banerjee helped financially.
Artistes from Kolkata and Mumbai, including singer Kailash Kher, came to Vivek Utsav at Ranaghat and gave video messages to come forward to save Ashmika. However, the family is worried.
Apart from this, many NGOs have also come forward to help Ashmika’s family financially, Impact Group has also told that a lot of money is slowly being deposited in their bank account, and they are going to spend this money for Ashmika’s treatment.
F.A.Q
1. Ranaghat Ashmika contact number?
If you people want to help this little girl living in Ranaghat who is suffering from a rare disease, then you can directly contact Ashmika’s father Subhankar Das on +91 90468 37117 this number.
2. What is the cost of the injection to cure Ashmika, a resident of Ranaghat?
Cost up-to Rs 16 crore.
Conclusion
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