At this time everyone is collecting funds on social media for Ashmika, a 1-year-old girl living in Ranaghat. Ashmika, who is a 1-year-old girl, is at this age where all children live happily and their parents are also happy with their little child, but this girl named Ashmika is going through a rare disease.
Her name is Ashmika; she is just 1 year old. If you call her name, she lies down on the bed and starts laughing. But will this smile remain on her face? This fear is the reason why her parents lose sleep at night. The parents do not know whether their daughter will ever be able to crawl and walk on her feet again or whether they will be able to see this scene or not.
Let us know in today’s article that Ashmika, a resident of Ranaghat, is suffering from which rare disease, if there is any treatment for it, how much money is going to be spent, and what is the reason for this rare disease.
Ranaghat Ashmika Das was suffering from a rare disease
Asmika’s small body has a terrible, rare disease. It is called spinal muscular atrophy type-1. Due to this disease, the baby’s muscles are slowly wasting away. If the child is not given a special injection by the age of one and a half years, it will be difficult for her to stand up in the future.
And huge expenses are being incurred while getting treatment, but giving that injection is beyond the power of Ashmika’s family. The cost of that injection is 16 crore rupees. This is a big sum for any middle-class family. Therefore, Ashmika’s parents are reaching out to people through social media hoping for help.
This small gem truly preserves the sweetness of the name like a moonlit face. Round eyes, when looking at the face, are full of life!
A few days ago, Ashmika turned one year old. The birthday cake was cut by the girl’s mother. No, it would be more correct to say that the mother cut the cake while holding her daughter’s hand. You would think that the parents would be very happy on the first birthday of their only daughter! But no, it is not so. Rather, there are tears in their eyes.
As Ashmika grows up, her parents are facing difficulties. They are unable to close their eyes at night due to anxiety. And during the day, their eyes become blurred seeing Ashmika’s sleeping face. Ashmika and her parents have only six months left.
Within that time, Ranaghat Ashmika Das will need to be given an injection; no, she will not have to give any five or any other kind of vaccines but one injection worth Rs 16 crores.
But what kind of disease is this for which the cost of one injection is about Rs 16 crore? Let us tell you that this is a type of genetic disorder, which is caused by genes. This disease especially affects nerves and muscles. The physical development of a person suffering from this disease stops.
If you want to know more about this disease in depth, then you must watch the video given below carefully so that you can know about this disease in detail.
And if they are not able to give this injection, then Ashmika will neither be able to get up nor walk. Ashmika Das, a resident of Ranaghat, Nadia, is fighting a difficult disease at the age of one year. A rear disease is slowly snatching a daughter from her parents.
Which rare disease is Ranaghat Ashmika Das of suffering from?
1-year-old Ashmika is the daughter of Subhankar Das and Laxmi Das, residents of Swami Vivekananda Sarani Daspara, Ranaghat. This girl was born in January 2024. But after only 4 months, a rare disease was detected in Ashmika’s body. According to reports, the parents of this girl came to know that its scientific name is spinal muscular atrophy.
Due to this disease, the growth of some parts and organs of the body stops completely. And due to this, Ashmika will be unable to walk like other children. Only an injection called ‘Zolgensama’ can help in getting relief from this disease, but it is very expensive. The cost of its treatment is about 16 crores.
Subhankar and Lakshmi are parents from a middle-class family; they do not have enough money to buy an injection worth Rs 16 crore for their daughter. Where will they get so much money for their daughter? Ashmika’s parents are unable to think of any solution after thinking about this. He has appealed to the general public for financial help to save his daughter.
What is the reason for the occurrence of this rare disease?
Ashmika’s mother, Laxmi Sarkar Das, said, She was fine like other children till the age of three months. She used to lift her feet and shake her hands. When she was three and a half months old, suddenly one day I saw that the leg was not lifting anymore.
Three- or four-month-old babies usually have a stiff neck. But nothing was happening to her. After that the running started. Treatment is started on the advice of a pediatrician. This complex disease is not treated in Nadia. So they had to go from Kolkata to Bangalore via Chennai. Parents rushed to several hospitals to recover little Ashmika.
Ashmika’s father, Subhankar Das, said she was first shown to a private hospital in Mukundapur; from there, the doctor gave some tests. The SMN gene test was done, and the report comes after 20 days; the doctor said it is a rare disease. Its treatment is not available in India. And the treatment that is available costs billions of rupees. After this they went to Vellore with Ashmika.
Spinal cord is a very complex disease. Ashmika’s doctor, Sanjukta Dey, said, Spinal muscular atrophy is a genetic disorder that is caused by genes. Affects nerves and muscles. The growth of nerves and muscles of hands and legs stops.
This injection is licensed for children under two years of age. It can be called an orphan drug. That is gene therapy, that is to say, ‘Onasemnogene-Abeparvovec.’ It has to be injected into the body once.
What is the dosage of this injection? The doctor said that this medicine goes into the body and helps those cells to male protein that have defective genes and are unable to make protein. But this injection is not available here; it has to be imported from outside.
The price of the injection is 9 crores. But the total, including taxes and import charges, may cost up to Rs 16 crore.
How much more money is required to give injection of Rs 16 crore to Ashmika?
Another 12 crore rupees are required within the next 5 months. So far only 4 crores have been collected for the girl’s treatment. The parents of Ranaghat’s 1-year-old Ashmika, Subhankar Das and Laxmi Das, are in mourning.
Many have come forward; even then, Ranaghat Ashmika Das’s family is not able to get everything together. Ashmika is suffering from a rare disease. It is not that there is no treatment. However, an injection of 16 crore is required. Singer Shubmita Banerjee helped financially.
Artists from Kolkata and Mumbai, including singer Kailash Kher, came to Vivek Utsav at Ranaghat and gave video messages to come forward to save Ashmika. However, the family is worried.
Apart from this, many NGOs have also come forward to help Ashmika’s family financially; Impact Guru has also told them that a lot of money is slowly being deposited in their bank account, and they are going to spend this money for Ashmika’s treatment.
From some selected celebrities of the Bollywood industry to famous artists of the Bengali film industry, everyone has extended their helping hand to help this little girl financially. It is very difficult for a middle-class family to arrange so much money.
And that is why people of every city in West Bengal are donating money to Ashmika’s family according to their financial condition so that the life of this little girl suffering from a rare disease can be saved.
F.A.Q
1. Ranaghat Ashmika contact number?
If you people want to help this little girl living in Ranaghat who is suffering from a rare disease, then you can directly contact Ashmika’s father, Subhankar Das, on +91 90468 37117. This is the number.
2. Where dose 1 year old Ashmika live?
Ashmika is a resident of Ranaghat city, located in West Bengal.
3. What is the cost of the injection to cure Ashmika, a resident of Ranaghat?
Cost up to Rs 16 crore.
4. Which rare disease is Ashmika suffering from?
Ashmika is suffering from a rare disease, whose scientific name is Spinal Muscular Atrophy.
Conclusion
Ranaghat Ashmika Das and her family are going through a very difficult situation, and through this article today we have tried to bring their problem to you. This information is based on the information found on social media and websites. To get more such news, visit the newskaghar24.com website.