Currently, everyone is raising funds on social media for Ashmika, a 1-year-old girl from Ranaghat. At this tender age, children typically enjoy happiness, and their parents share in that joy. However, Ashmika is facing a rare illness.
Her name is Ashmika, and she is only 1 year old. When you call her, she lies down on the bed and begins to laugh. But will that smile continue to grace her face? This uncertainty is what keeps her parents awake at night. They are anxious about whether their daughter will ever crawl or walk again, or if they will witness those milestones.
In today’s article, we will discuss the rare disease affecting Ashmika, a resident of Ranaghat, explore potential treatments, the financial implications, the financial implications, and the underlying cause of this rare condition.
Ranaghat’s Ashmika Das has been battling a rare disease
Asmika’s small body is afflicted by a severe, rare disease known as spinal muscular atrophy type-1. This condition causes the child’s muscles to gradually deteriorate. If she dose not receive a specific injection by the time she is on and a half years old, it may become challenging for her to stand in the future.
Significant expenses are being incurred for treatment, yet Ashmika’s family cannot afford the injection, which costs 16 crore rupees. This amount is substantial for any middle-class family. Consequently, Ashmika’s parents are appealing to people through social media in search of assistance.
This little gem beautifully captures the essence of her name, reminiscent of a moonlit visage. Her round eyes, when gazing at her face, radiate vitality!
Recently, Ashmika celebrated her first birthday. The cake was cut by her mother, who held her daughter’s hand while doing so. One might assume that the parents would be overjoyed on the occasion of their only daughter’s first birthday! However, that is not the case. Instead, tears fill their eyes.
As Ashmika continues to grow, her parents are encountering numerous challenges. They find it difficult to sleep at night due to worry. During the day, their vision blurs as they look at Ashmika’s peaceful sleeping face. Ashmika and parents have only six months remaining.
During this period, Ranaghat’s Ashmika Das will require a specific injection; no, she will not need to receive any five vaccines or any other types, but rather a single injection that costs Rs 16 crores.
But what type of illness necessitates an injection priced at approximately Rs 16 crores? This is a from of genetic disorder caused by genetic factors. This condition primarily impacts the nerves and muscles, halting the physical development of the affected individual.
If you’re interested in learning more about this disease thoroughly, be sure to watch the video below attentively to gain detailed insights about it.
Should they fail to administer this injection, Ashmika will be unable to stand or walk. Ashmika Das, a one-year-old from Ranaghat, Nadia, is battling a challenging illness. A rare disease is gradually taking her away from her parents.
Which rare illness is affecting Ranaghat’s Ashmika Das?
1-year-old Ashmika is the daughter of Subhankar Das and Laxmi Das, who live in Swami Vivekananda Sarani Daspara, Ranaghat. She was born in January2024. However, just 4 months later, a rare disease was identified in Ashmika. Reports indicate that her parents learned the scientific name of the condition is spinal muscular atrophy.
This disease causes the growth of certain body parts and organs to halt completely. As a result, Ashmika will not be able to walk like other children. The only treatment that can provide relief is an injection called ‘Zolgensma’, which is extremely costly. The total cost for this treatment is approximately 16 crores.
Subhankar and Laxmi belong to a middle-class family and do not have sufficient funds to purchase an injection priced at Rs 16 crore for their daughter. They are at a loss as to where they can obtain such a large sum of money. After contemplating this situation, Ashmika’s parents have reached out to the public for financial assistance to save their daughter.
The reason behind the occurrence of this rare disease
Laxmi Sarkar Das, Ashmika’s mother, stated, ”She was doing well like other children until she reached three months of age. She would lift her feet and move her hands. However, when she turned three and a half months old, I noticed one day that her led was no longer lifting.”
Typically, babies around three to four months old exhibit a stiff neck, but that was not the case with her. Following that, the running began. Treatment commenced based on a pediatrician’s recommendation. This intricate condition is not treated in Nadia, necessitating travel from Kolkata to Bangalore via Chennai. The parents hurried to multiple hospitals in search of a solution for little Ashmika.
Subhankar Das, Ashmika’s father, mentioned that she was initially taken to a private hospital in Mukundapur, where the doctor ordered several tests. The SMN gene test was conducted, and after a 20-day wait, the doctor revealed that it was a rare disease. Treatment for it is unavailable in India, and the available treatment costs billions of rupees. Subsequently, they traveled to Vellore with Ashmika.
Spinal cord issues are highly complex. Dr. Sanjukta Dey, Ashmika’s physician, explained, ”Spinal muscular atrophy is a genetic disorder caused by genetic factors. It impacts the nerves and muscles, halting the development of the nerves and muscles in the arms and legs.”
This injection is approved for children under the age of two. It is classified as an orphan drug, specifically gene therapy known as ‘Onasemnogene-Abeparvovec.’ The injection must be administered into the body just once.
What is the dosage for this injection? According to the doctor, this medication enters the body and assists cells with defective genes in producing proteins. However, this injection is not available locally; it must be imported from abroad.
The cost of the injection is 9 crores. However, when including taxes and import fees, the total may reach up to Rs 16 crore.
Remaining funds for Ashmika’s ₹16 crore injection
An additional 12 crore rupees will be needed within the next five months. To date, only 4 crores have been raised for the treatment of the girl. The parents of 1-year-old Ashmika Das from Ranaghat, Subhankar Das and Laxmi Das, are in deep sorrow.
Despite many offers of help, the family of Ashmika Das in Ranaghat is struggling to gather the necessary funds. Ashmika is afflicted with a rare disease. While treatment option exist, the required injection costs 16 crore. Financial assistance has been provided by singer Shubmita Banerjee.
Artists from Kolkata and Mumbai, including singer Kailash Kher, attended Vivek Utsav in Ranaghat and recorded video messages urging support for Ashmika. Nevertheless, the family remains concerned.
In addition, numerous NGOs have stepped in to provide financial assistance to Ashmika’s family; Impact Guru has informed them that a significant amount of money is gradually being credited to their bank account, which will be utilized for Ashmika’s medical treatment.
From select Bollywood celebrities to renowned figures in the Bengali film industry, many have offered their support to aid this young girl financially. It is quite challenging for a middle-class family to gather such a large sum of money.
This is why individuals from every city in West Bengal are contributing funds to Ashmika’s family based on their financial capabilities, in hopes of saving the life of this little girl afflicted with a rare illness.
F.A.Q
1. What is the contact number for Ashmika in Ranaghat?
If you wish to assist this young girl from Ranaghat who is battling a rare illness, you can reach out directly to her father, Subhankar Das, at +91 90468 37117. This is the contact number.
2. Where dose Ashmika, who is 1 year old, reside?
Ashmika lives in the city of Ranaghat, situated in West Bengal.
3. How much does the injection cost to treat Ashmika, a resident of Ranaghat?
The cost cost approximately Rs 16 crore.
4. What rare condition is Ashmika suffering from?
Ashmika is afflicted with a rare condition known scientifically as Spinal Muscular Atrophy.
Conclusion
Ranaghat Ashmika Das and her family are facing an extremely challenging situation, and through this article, we aim to shed light on their plight. This information is derived from social media and various websites. For more updates like this, please visit the newskaghar24.com website.